By
Meddie Musosi
As the world marks International Albinism Awareness Day, the Elgon Foundation for Persons with Albinism (EFPA) is gearing up for a powerful local celebration in Mbale on Friday, 27th June 2025, at Lukhobo Gardens.
Under the global theme, “Demanding Our Rights: Protect Our Skin, Preserve Our Lives,” the event seeks to confront deep-rooted myths and discrimination faced by persons with albinism in Uganda’s Elgon region.
For many living with albinism, life is a daily battle against misunderstanding, stigma, and sometimes violence. The EFPA aims to amplify their voices, urging communities to recognize their dignity and rights.
“We are human beings with red blood like everyone else,” said EFPA Executive Director Negesa Elizabeth at a recent press conference at St. Andrews Cathedral in Mbale. She highlighted the urgent need to dispel harmful beliefs that continue to put lives at risk.
“Some believe that touching or having sex with someone with albinism brings blessings, or that our bodies vanish after death—these myths fuel discrimination and attacks. We must end them,” she stressed.
Among those sharing her story is Musiya Peace, a determined Senior Three student at Bukonde Secondary School. Despite visual challenges that make reading the blackboard difficult, Musiya is supported by her teachers and classmates. Her dream is to become a doctor, but financial struggles threaten her path.
“My mother is a single parent, and school fees are hard to manage,” Musiya shared. “I hope kind people will help me finish my education.” EFPA’s Project Officer, Ayebare Racheal, emphasized the vulnerability of persons with albinism and the pressing need for inclusive healthcare and education.
“They deserve protection and equal opportunities just like any other citizen,” she said. While Uganda’s national celebrations were held in Mukono District on 13th June, the Elgon region’s event ensures that local voices are heard loud and clear.
EFPA invites everyone to join the gathering at Lukhobo Gardens and stand in solidarity with the albino community. As the day approaches, the message is clear: Awareness is the first step toward acceptance, protection, and inclusion.
